Little Meara battles severe epilepsy. She is at risk for SUDEP (sudden unexpected death in epilepsy) since she has seizures while sleeping.
The local newspaper, the Boulder Daily Camera, had this to say about the premiere for Meara.
Little Meara battles severe epilepsy. She is at risk for SUDEP (sudden unexpected death in epilepsy) since she has seizures while sleeping.
The local newspaper, the Boulder Daily Camera, had this to say about the premiere for Meara.
Chase the Music provided our friend Jack Knight, who has Duchenne’s Muscular Dystrophy with a piece, “Ataraxia”. Ataraxia means peace and tranquility. Well Jack is not a quiet and calm young man. But, he is at peace with his situation, and looks to inspire others. We hope his song does too.
I first met Destinee at the Colorado Wheelchair Camp. They had called her to the front to receive an award. Destinee was taking longer than most to come forward. Imagine a gym floor full of kids in wheelchairs, all wanting to be close to their friends at the end of their week-long camp. As Destinee came to the front, I noted that not only was she in a chair, but she was using a white cane to navigate. Right away, I knew this young lady needed a song.
The fall 2018 CU School of Dance Pedagogy class collaborated with Chase the Music to bring music and dance to about 15 little ones (ages 4-5), at the Journey School in Boulder, Colorado.
When Fort Collins singer/songwriter Molly Taylor told Jamin that she’d be writing a Chase the Music song for him, he replied – “Don’t write a song for me, write for someone who’s really sick”. Molly took that as inspiration and wrote “Determined” a song not just for Jamin but also from him as a gift to those others…